Riley seeks others to participate in a paired kidney donation.

Kidney Transplant Blog, Kidney wanted, paired kidney exchange, kidney transplantationHello,

My name is Riley Crowder. I am a 26 year old girl with my Masters in Child Life. For those of you who do not know what Child Life is: Child Life Specialist work in hospitals to normalize the environment for children and their families through explaining new diagnoses, preparing for procedures and tests in developmentally appropriate ways and using play to distract from painful and trauma invoking tests or procedures. I love hiking, kayaking, going to the gym, being around my friends. My friends and family would describe me as a loving, kind, empathetic, funny, outgoing, loyal, hardworking, and motivated girl.

Sounds like a description of the average 26 year old; does it not? Well, the second part of my life story is a bit more “different” than the average girl my age…At 4 years old, I was diagnosed with End Stage Renal Disease. At the tiny age of 4, I started taking loads of medication, including two shots; one to make me grow and one to keep my red blood cell count up. Like all medications, they had their side effects… The growth hormone shot somehow gave me childhood epilepsy. So, at 4 and a half years old, I was put on an anti-seizure medication. That medication ended up causing pancreatitis at 7 years old. It went undiagnosed for 6 months, and almost killed me. Luckily, That was the last big hospitalization until I was 12 years old. I finally got a live donor kidney from my mom!

Life could not have been better! Even though I still had to take a ton of medication, with a ton of side effects, I was ecstatic! I could finally live a life uninterrupted by hospitalizations and needles. I could play soccer without feeling like I was going to pass out, dance ballet with all the energy in the world, and most importantly, I was ablue to go to school, hang out with my friends; essentially living a normal life.

During this healthy time in my life, I feel as though I took full advantage. I graduated from middle school, high school, college, and graduate school. I traveled the country, hiked the Grand Canyon, and lived life to the fullest. I graduated May 2014 with my Graduate degree from Wheelock College in Child Life and by August, I had landed my dream job as a Child Life Specialist in the ER at Miami Children’s hospital. I was so excited to start my new job in Miami! I wanted to give back; give children a sense of normalcy during an incredibly traumatic time in their lives.

Unfortunately, a year and a half a go on December 25th, 2014; I lost my first transplant of 13 years and had to be put on dialysis. On that day, I had to come to terms that I could no longer work as a Child Life Specialist because of dialysis and the immune suppressants I take for my kidney transplant.

I am not sharing my story to get a pity party. I am sharing my story because I, among hundreds of thousands that need a new kidney. But honestly, what makes me deserve one more than the 26 year old physical therapist that has been waiting 6 years already for a second transplant? Nothing. But there is a program at Massachusetts General Hospital called the Exchange Program. The Exchange program is also known as paired donation; Person A who needs a kidney secures a willing donor A that does not match directly to him/ her. Then person B, with another willing donor B who matches person A. Person A gets a kidney from donor B, while person B gets a kidney from donor A.

Through this program, instead of saving one person’s life, you could save two! How amazing does that sound? How would you feel about telling that life story? Please take the time to contact Massachusetts General Hospital’s Kidney Transplant Program at 617-643-7193. Please share my story On your blog, Facebook page, and any other outlet you may have.

My Facebook page: http://www.facebook.com/rileyecrowder  

Thank you!

Posted in Uncategorized | Tagged , , , | Comments Off on Riley seeks others to participate in a paired kidney donation.

Few kidney transplants done prior to dialysis

Y0217et, a new study conducted by Mayo Clinic and the University of Michigan shows that only one-third of patients who ultimately receive a living donor kidney transplant receive it pre-emptively (i.e., before starting dialysis). Less than two-thirds receive a transplant either pre-emptively or within a year of starting dialysis.  More Info >>

Posted in Uncategorized | Tagged , | Comments Off on Few kidney transplants done prior to dialysis

A novel idea for a kidney search.

New Podcast “Straight Outta Kidneys with Jason Berry” now available o iTunes!  Would you trade your exclusive Yeezy sneakers for a kidney??  Matt Neal would!  I caught up with Matt and discussed the trials and tribulations of Peritoneal Dialysis and searching for a kidney transplant.  Other topics of discussion include music, politics and everything under the sun.  The podcast is designed to provide information, positivity, and compassion.  Jason who is also in need of a kidney can def relate to Matt and others awaiting an organ transplant.  Subscribe to “Straight Outta Kidneys”

https://itunes.apple.com/us/podcast/straight-outta-kidneys-jason/id1037729320

Posted in Uncategorized | Comments Off on A novel idea for a kidney search.

Family of teenager who donated kidney meet the recipient – 40 years later

AnneIt has been 46 years since two siblings from Bristol lost their older brother in a motorbike accident.

For decades, Frances and Clive Hook have grieved for their brother Ellis, but had no idea who received the kidney which was donated by him as he lay in Southmead Hospital, all those years ago.

But an emotional reunion was held on Saturday, as Frances and Clive finally tracked down the woman who was taking care of Ellis’ kidney – Anne Whiteman.  READ MORE>>

Posted in Uncategorized | Tagged , | Comments Off on Family of teenager who donated kidney meet the recipient – 40 years later

Beauty queen met her kidney donor down the hall

Elleb“I did go through some deep, deep depression,” said Ellen Rorman.

Rorman, a former Miss Eagan, is used to smiling for a crowd, but often, she felt more like crying in the dark.

“In the beginning, I thought I couldn’t handle it, but I’ve learned I’m a lot stronger than I think I am,” she said.

At 23, Rorman has had more surgeries than years of life. She had a transplant at 18, but then at 21 she suffered kidney failure and now has 12 hours of dialysis every week.  READ MORE>>

Posted in Uncategorized | Tagged , | Comments Off on Beauty queen met her kidney donor down the hall

Donor Family Meets Kidney Recipient

DonorA family in the Triad lost their 11-year-old daughter early this year.

Ashanti died from an infection in the brain and a devastating stroke. Ashanti’s mom Donzaletta Whitt told WFMY News 2, it started as common respiratory issues during Christmas break last year then it turned into a disease that affected her brain. On New Year’s Day, doctors declared her brain dead. Ashanti’s parents decided to donate her organs.  READ MORE>>

Posted in Uncategorized | Tagged , , | Comments Off on Donor Family Meets Kidney Recipient

One family, three kidney donations to save a loved one

Sandy Webster is thankful for the men in her life.

“I think I’m just surrounded by some really strong guys. My dad, my husband, my son. Hopefully that’s it,” said Webster.

Webster said she hopes to never need another person to donate a kidney to.

I was diagnosed with Henoch-Schönlein purpura when I was 10, and it affects your kidney filters. It’s an autoimmune disease and at 13, I went on dialysis for six months,” said Webster.  READ MORE>>

 

Posted in Uncategorized | Tagged , , | Comments Off on One family, three kidney donations to save a loved one

Miracle kidney match

FacebookAn Effingham County Sheriff’s Deputy who is in Stage 5 Renal Failure and searching for a kidney donor has found his match!

We introduced you to Deputy Ivey Williamson in February when he launched a full-out social media campaign to find a kidney donor. His cousin, who is also in law enforcement on the other side of Georgia, had kidney failure as well and found his match through Facebook. Ivey decided to follow suit, and now, the good news coming in just this week, a donor, a complete stranger, has come forward and tested at Emory University Hospital, and now they will go through with the transplant.  READ MORE>>

Posted in Uncategorized | Tagged , , | Comments Off on Miracle kidney match

Man donates kidney, contributes to longest kidney chain ever

LynnIt all started at UW Health. One Verona man offered to donate his kidney to his sister-in-law. Unfortunately he wasn’t a match but he still was able to donate to someone else, someone he didn’t even know- helping set off a kidney donation chain.

It’s not every day you’re able to meet a real life hero, “the benefit was far, far greater than the risk I could take,” said Lynn Johnson. Lynn Johnson’s name will soon be showcased on this wall for his kidney donation; but he’s quick to not take much of the credit for his good deed. He added, “there’s a lot of heroes in this world, I’m just one of a lot of people.”

His story started five years ago. “My wife needed a kidney transplant,” he explained. Lynn volunteered, but her sister was a better match for her. Lynn explained, “my wife has been in great shape ever since.” Soon after- another sister needed a kidney, and Lynn was first in line. “It was a small price to pay to really help her out a lot,” he said.  READ MORE>>

Posted in Uncategorized | Tagged , , | Comments Off on Man donates kidney, contributes to longest kidney chain ever

Ironman racer competes after donating kidney to wife

BillDuring Saturday’s Memorial Hermann Ironman Texas Triathlon, most racers will compete after months, sometimes years, of training, strict diet regimens and vigorous workouts.

But after donating a kidney to his wife, one of the thousands of participants will compete to win in fewer than 13 hours.

Bill Quella, Ironman competitor and kidney donor, will run, bike and swim with one kidney after having donated one to his wife Valerie Quella in 2009.  READ MORE>>

Posted in Uncategorized | Tagged , , | Comments Off on Ironman racer competes after donating kidney to wife